The Hemophilia Philippines (HAPLOS Community) Foundation Inc. was founded as a patient group in 1993 and registered with the SEC as a non-profit, non-stock organization in 1994.
It aims to help people with hemophilia and other inherited bleeding disorders (PWH) attain a better quality of life and be able to contribute to the greater good of the Filipino.
OUR PHILOSOPHY
An individual person with hemophilia like any other human person is not an island. By his nature he needs to relate with others like him. More importantly a person with Hemophilia has needs which are specific for persons with afflictions like medical, mental, emotional, spiritual and social. The fundamental role of HAPLOS is to provide this environment of a caring and loving community.
We therefore give great efforts into our Community Building Programs. These efforts are even made very critical because at this time, proper treatment and care for hemophilia are lacking in the Philippines. Factor replacement therapy is very expensive and beyond the reach of most of our members. Presently, needed Factor Concentrates are substantially supplied by humanitarian aids.
A Person with Hemophilia, no matter what his physical health condition maybe, still has hemophilia. He is still not like anyone else. He will have a natural desire to be with others who are similarly situated as he is. He needs a community. That is what HAPLOS is all about, a community.
THE HAPLOS WAY OF LIFE
The way of life we are trying to live out is embodied in the following declarations:
"We are HEMOPHILIA"
A state of awareness about hemophilia, acceptance of the fact that we have life long disorder and we are able to live with it.
"Living Beyond Limits"
We overcome our limitations and we strive to be physically active, mentally sharp, emotionally healthy, spiritually strong and socially involved. Thus we are enabled and empowered to care for ourselves and for one another.
"Living for others"
As individuals and as a Community, we grow to being empowered, inspired, and grateful. Our self awareness and gratifications move us to reach out to others and help those who likewise need help and inspiration, namely the poor and the sick.
OUR HISTORY
was originally formed in 1993 by persons with hemophilia, their family , medical professionals. These families held monthly meetings called “Mothers classes”. It was originally registered with the SEC in 1994 as the Hemophilia Association of Parents for Love and Service, (HAPLOS) Inc. In 2001 the name was changed to HEMOPHILIA PHILIPPINES (HAPLOS Community) FOUNDATION, INC. together with amendments to its By-Laws to confirm its being a Foundation, a Non-Stock and Non-Profit Organization.
From the original members of parents, their children with hemophilia and some hematologists from the Philippine Society of Hematology and Blood Transfusion, the Association’s membership expanded to include other family members and carers, volunteers, advocates, medical and paramedical practitioners and contributing sustaining members who desire to help in the cause for hemophilia care.
It was established to help persons with hemophilia (PWH) attain a better quality of life and be meaningful contributors to the greater good of the Filipino. HAPLOS programs are aimed to enable Persons with Hemophilia (PWH) to be physically active, mentally sharp, emotionally healthy, spiritually strong and socially involved.
During the first ten years, the governance of HAPLOS had been a joint undertaking of parents and the doctors. In the next ten years, the patients and parents handled the affairs of HAPLOS while the doctors had a supportive role through the Philippine National Hemophilia Center Foundation (PNHCF).
Starting in 2013, HAPLOS have agreed to fully undertake the role of PNHCF into its operations. By 2016, HAPLOS has already consolidated this function previously done by PNHCF into HAPLOS through its the Medical Affairs Committee. Notwithstanding this functional integration, HAPLOS remains as a Patient Driven and Centered Organization with an independent Medical Affairs group within its organization.
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